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Welcome to our May Newsletter

Hello from everyone at Colostomy UK!

In this edition of our e-news, we’re sharing the latest updates, support and opportunities to help you live well with a stoma. From tips on preventing sore skin and leaks to staying active and connected through our returning #ActiveOstomates online classes, there’s plenty to explore.

Find out how Tracey Emin is helping raise awareness of stomas and invisible disabilities during TfL Priority Seating Week, discover the new summer edition of Tidings: The Digital Edit, and explore our Stoma-Friendly Toilet Finder to help you plan outings with confidence.

You can also learn more about how your support helps ensure no one faces life with a stoma alone, through our helpline, information services, advocacy work and community support.

Tracey Emin Voices TfL Priority Seating Announcements to Raise Awareness of Stomas and Invisible Disabilities Transport for London (TfL) is marking Priority Seating Week by raising awareness of invisible disabilities and health conditions, including life with a stoma. Artist Tracey Emin, who has spoken publicly about living with a stoma following cancer treatment, has recorded announcements across the network encouraging passengers to “look up” and offer their seat to someone who may need it more. For many people living with a stoma, standing on crowded public transport can be physically difficult and emotionally stressful. Fatigue, pain and anxiety about leaks are not always visible, but having access to a seat can make a huge difference.
Tracey Emin Voices TfL Priority Seating Announcements to Raise Awareness of Stomas and Invisible Disabilities

Transport for London (TfL) is marking Priority Seating Week by raising awareness of invisible disabilities and health conditions, including life with a stoma. Artist Tracey Emin, who has spoken publicly about living with a stoma, has recorded announcements across the network encouraging passengers to “look up” and offer their seat to someone who may need it more. 

For many people living with a stoma, standing on crowded public transport can be physically difficult and emotionally stressful. Fatigue, pain and anxiety about leaks are not always visible, but having access to a seat can make a huge difference. 

We have been proud to support TfL’s work to improve understanding of life with a stoma and the challenges some people can face when travelling on public transport. Fatigue, pain and anxiety about leaks can make standing for long periods difficult, and access to a seat can make a huge difference to someone’s journey.

For many people living with a stoma, the challenges of using public transport are not always visible, but they are very real.

Read more about Priority Seating Week and how to request a badge
 
Get a secure, comfortable seal between your stoma and your stoma pouch with HyperSeal® Mouldable Seals.
Discover HyperSeal®
Trusted protection to help you feel confident and cared for.

Get a secure, comfortable seal between your stoma and your stoma pouch with HyperSeal® Mouldable Seals.

Request a FREE sample

Not sure if a mouldable seal is right for you?

Our guide explains what seals do and when they might be helpful.

Access your mouldable seals guide now!
 
The new summer edition of Tidings is now available!  

Visit our fantastic new Tidings: The Digital Edit blog to access all the latest articles, including Real Life stories, wellbeing features and much more - all now fully compatible with mobile phones too!*

In the summer edition, you’ll find the story of Lillie Dodd and her mum Emma, discussing life with a stoma, and autism and Colostomy UK’s President, Ian Daniels, offers guidance on adhesions and blockages. We are also proud to announce that Colostomy UK was a 2026 winner of the GSK IMPACT Award. Our CEO, Libby Herbert, explains what this prestigious accolade means to the charity. 

*Links to the PDF and flipbook versions of the summer edition of Tidings can also be found on the new site. 

Tidings: The Digital Edit
 
Our #ActiveOstomates - At Home online classes are back! Starting June 2nd, Eight weeks of Pilates, yoga, mindfulness and Chair Yoga all from the comfort of your own home!   To find out more or sign up today, visit our website!

Our #ActiveOstomates - At Home online classes are back! Starting June 2nd, Eight weeks of Pilates, yoga, mindfulness and Chair Yoga all from the comfort of your own home! 

To find out more or sign up today, visit our website!

 
Sore skin and leaks can affect comfort and confidence, but there are simple steps that may help. Changes in stoma size, skin creases, sweating or poor pouch fit can all contribute to problems.  Cleaning the skin with warm water only, making sure the skin is dry before applying your pouch, and checking the fit regularly can help protect your skin and reduce leaks. If problems continue, speak to your stoma care nurse for advice and support.
Stoma 101: Sore Skin and Leakage - Tips to Help Protect Your Skin

Sore skin and leaks can affect comfort and confidence, but there are simple steps that may help. Changes in stoma size, skin creases, sweating or poor pouch fit can all contribute to problems.

Read our top tips on preventing leaks and keeping skin healthy
 
It could be through speaking to us on our 24-hour stoma helpline, benefitting from peer support through our private Facebook group, finding information about a specific issue they’re facing, regaining strength and confidence through an Active Ostomates class, or getting out and about again thanks to stoma friendly accessible toilets in their area.

Be the reason no one faces stoma surgery alone.

As a small charity who receive no government funding, every donation makes a direct difference to the support we can provide for people living with a stoma across the UK. From our helpline and support services to trusted information and advocacy, your support helps ensure we are there whenever people need us.

If you would like to support our work, please donate today

 
Our Stoma Friendly Toilets listings are now live We’re excited to launch our new Stoma-Friendly Toilet Locations Listings! These toilets include hooks, shelves, bins, and full-length mirrors, all designed with your comfort and dignity in mind. Explore the listings and plan your outings with confidence!
Take a look at our stoma-friendly toilet venues across the UK on our website!

There are over 1300 venues and growing! This work forms part of our ongoing campaign to improve public toilet provision and reduce stigma.

We welcome organisations who would like to join the initiative and help create more inclusive spaces

Find a Stoma Friendly Toilet near you!
 
On Wednesday 3rd June, our corporate supporter Irwin Mitchell will be hosting a free legal drop-in service for members of the Colostomy UK community.
Free legal drop-in with Irwin Mitchell

On Wednesday 3rd June, our corporate supporter Irwin Mitchell will be hosting a free legal drop-in service for members of the Colostomy UK community.

Read more

colostomyuk.org

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